6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
NIHR CRN-Children - National Institute for Health Research Clinical Research Network-Children |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | The MCRN CC and most of the MCRN Local Research Networks are committed to the involvement of children, parents and families in all aspects of network activity. The MCRN Children and Young Persons' Group regularly provides input to the design and delivery of MCRN Portfolio studies. Each of the MCRN Clinical Studies Groups has several parent members to ensure that the patients' perspective is considered in the development of new paediatric studies. |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | The MCRN Children and Young Person's Group have produced a series of guidance documents to support the development of appropriate information leaflets for clinical research involving children. These are available via the MCRN website. |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | MCRN Clinical Studies Group regularly review their research priorities and the MCRN led a pan-European paediatric research prioritisation exercise as part of the ERANET PRIOMEDCHILD project. This included the involvement of parents and carers and a number of parents presented their perspective on this prioritisation process at the international conference where the finding of the prioritisation exercise were presented and discussed. |