2 - Network organisation and process
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
NIHR CRN-Children - National Institute for Health Research Clinical Research Network-Children |
|
| Existence of an identified contact person for external enquiries | Yes | info@mcrn.org.uk |
| Existence of an internal steering committee | Yes | MCRN Executive Committee has representation of all consortium member organisations |
| Existence of an external advisory steering committee directing the reporting party | Yes | MCRN Board includes representation from all key internal and external stakeholders, including representation from the Department of Health for England. |
| Existence of a website | Yes | http://www.mcrn.org.uk/ |
| Existence of newsletter | Yes | Quarterly newsletter circulated electronically and available on the MCRN website |
| Existence of internal databases for disease, condition treatment and/or outcome | Yes | MCRN Local Research Networks have access to local and regional databases of children with specific diseases or conditions. |
| Provisions to ascertain data protection and data security | Yes | The network complies with national and local policies relating to data protection, patient safety and research governance. |
| Procedures to access the database by third parties | Yes | Access to relevant data is available via the MCRN Local Research Networks and Clinical Studies Groups |
| Access to external databases/registries | Yes | The network has access to some external databases/registries through its associates. |
| Standardised process to access an external database | No | This varies according to the specific database/registry. |