6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
RIPPS - Réseau d'Investigation Pédiatrique des Produits de Santé Service de Pharmacologie Clinique (Hôpital Saint Vincent de Paul Groupe hospitalier Cochin – Saint Vincent de Paul) |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | Through EUPATI-France project (European patients academy on therapeutic innovations) and KIDS-France (The Kids and Families Impacting Disease through Science) and patients associations (e.g Xtraordinaire, Le Goéland, Rett, Foundation Maladie Rare, Autism France, Sésame, UNAPEI) |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | INSERM |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | No |