6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
Newcastle-CCLG - Newcastle Children's Cancer and Leukaemia Pharmacology Studies Group |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | We seek advice from the patient advocacy group PORT in relation to the information sheets provided as part of our clinical trials. A member of ICCCPO (International Confederation of Childhood Cancer Parent Organisations) also sits on the Data Safety and Ethics Monitoring Committee which independently reviews our studies. |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | See above. |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | No |