6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
PENTA - Fondazione Penta Onlus - Paediatric European Network for the Treatment of AIDS and Infectious Diseases |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | Patient advocates are members of the PENTA-ID Steering Committee and are involved in the protocol design. Consultations have been undertaken with childrena and young people patient groups such as CHIVA youth in the UK about trial issues |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | Input on Patient information sheets is received from patient advocates and specialist nursing staff |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes |