2 - Network organisation and process
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
PENTA - Fondazione Penta Onlus - Paediatric European Network for the Treatment of AIDS and Infectious Diseases |
|
| Existence of an identified contact person for external enquiries | Yes | via website |
| Existence of an internal steering committee | Yes | PENTA-ID Steering Committee |
| Existence of an external advisory steering committee directing the reporting party | Yes | |
| Existence of a website | Yes | |
| Existence of newsletter | Yes | PENTA-ID news updated through he website |
| Existence of internal databases for disease, condition treatment and/or outcome | Yes | Internal database including all trials, studies and projects run by the Foundation and divided by research area |
| Provisions to ascertain data protection and data security | Yes | All data are held on secure MRC or INSERM databases and handling of paper data conforms to European and national data protection standards |
| Procedures to access the database by third parties | Yes | |
| Access to external databases/registries | Yes | |
| Standardised process to access an external database | Yes |