6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
SPACE - Severe Paediatric Asthma Collaborative in Europe |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | The protocol, information sheets, consent and assent forms were developed with the help of parent and patient representatives. The European Lung Foundation and the Patient Advisory Group are heavily involved and form part of the SPACE steering committee. |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | As above |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | As above - although no trials are currently planned yet - but the patient and parent representatives will be involved and consulted in all future network activities. |