ID - Identification
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | |
|---|---|
Name |
ECFS-CTN - European Cystic Fibrosis Society - Clinical Trials Network |
| Type | Disease specific European network ECFS-CTN aims to intensify clinical research in cystic fibrosis (CF) and to bring new medicines to people with CF as quickly as possible. This is achieved by: • Sharing expertise among edicated CF researchers • Close collaboration with patient organizations • Centralizing review of clinical trial protocols for academic and commercial sponsors • Supporting study conduct in member sites • Standardizing research procedures and trial outcome measures • Training site staff • Improving and maintaining site capacity to conduct trials (infrastructure and staff) • Faciliate and encourage investigator-initiated trials • Participate in collaboratif projects to improve the clinical trial landscape in Europe, and thereby improve clinical research in CF. |
| Street | Postal address (see above for legal address): UZ Gasthuisberg ECFS-CTN Mucoteam-Kindergeneeskunde Herestraat 49 |
| Postal code | 3000 |
| Town | Leuven |
| Country | Belgium |
| Telephone 1 | +32 479 983839 |
| Telephone 2 | none (updated) |
| Mobile phone | +32 479 983839 |
| Fax | none (updated) |
| Web site | www.ecfs.eu/ctn |
| Email for general enquiries | ecfs-ctn@uzleuven.be |
| First name main contact | Fiona |
| Second name main contact | Dunlevy |
| First name further contacts | Veerle |
| Second name further contacts | Bulteel |
| The data in this document are current as of | 17 November 2024 |
| State how this document can be accessed by the public | https://www.ecfs.eu/ctn/enprema-self-assessment-form |
| Year of foundation | 2008 |
| Specialties_conditions covered | Cystic Fibrosis, network also includes adult CF patients |
| PkID | 110 |