1 - Research experience and ability
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | |
|---|---|
Name |
ECFS-CTN - European Cystic Fibrosis Society - Clinical Trials Network |
| Number of completed trials | 27 |
| Number of ongoing trials | 14 |
| Total number of participants actually recruited each year | 1856 |
| Proportion of eligible participants actually recruited each year | 20% |
| Describe way of screening and participant recruitment | Sites consult local databases on request pharma company or coordinated by the network. Recruitment numbers above and number of studies for Q1.1 are pediatric studies that were recruiting or in followup at any point from 2020-2024. Adult patients participating in the same studies were not counted. |
| Total number of collaborating centres | 54 |
| Academic investigator initiated studies | |
| Number of ongoing and completed clinical trials. Absolute number | 4 |
| Number of ongoing and completed clinical trials. Proportion of all studies | 9.8% (4 / 41 studies) |
| Number of paediatric specialties covered by paediatric trials] | 1 |
| Number of paediatric conditions covered by paediatric trials] | 1 |
| Number of other ongoing research studies programs] | 5 |
| Proportion of academic initiated studies | 100% |
| Proportion of budget | 100% |
| Number of registered study participants. All studies |
1177 |
| Number of ongoing and completed trials | 32 |
| Number of paediatric specialties covered by paediatric trials | 1 |
| Number of paediatric conditions covered by paediatric trialss | 1 |
| Number of registered study participants all studies | 659 |