D - Description
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | |
|---|---|
Name |
PRINTO - Pediatric Rheumatology International Trials Organisation |
| Year of foundation | 1996 |
| Preterm and/or term newborn | No |
| Infants from 1 month to less than 24 months of age | Yes |
| Children from 2 years to less than 12 years of age | Yes |
| Adolescents from 12 years to less than 18 years | Yes |
| Paediatric age ranges of study participants covered by the network | 0-18 years |
| Multispeciality? Specify | --- |
| Speciality/disease specific? Specify | Rheumatology, Immunology |
| Conditions covered? Specify | JUVENILE IDIOPATHIC ARTHRITIS SYSTEMIC LUPUS ERYTHEMATOSUS JUVENILE DERMATOMYOSITIS SCLERODERMA JUVENILE SPONDYLOARTHROPATHIES KAWASAKI DISEASE HENOCH- SCHOENLEIN PURPURA RARE JUVENILE PRIMARY SYSTEMIC VASCULITIS Polyarteritis nodosa, Takayasu, Wegener’s granulomatosis, Other vasculitides RHEUMATIC FEVER AND POST-STREPTOCOCCAL REACTIVE ARTHRITIS AUTOINFLAMMATORY DISEASES Blau’s disease/Juvenile Sarcoidosis Cryopyrin associated periodic syndromes (CAPS)(CINCA/ Muckle Wells/ FCAS) Chronic non bacterial osteomyelitis/osteitis (or CRMO) Deficiency of IL-1 receptor antagonist (DIRA) Familial Mediterranean Fever (FMF) Mevalonate kinase Deficiency (MKD) (or Hyper IgD syndrome) NALP12-related disease PAPA syndrome (pyoderma gangrenosum, acne, pyogenic arthritis) PFAPA (Marshall’ s syndrome) TNF receptor associated periodic syndrome (TRAPS) BEHCET’S DISEASE LYME ARTHRITIS PAIN SYNDROMES |
| Procedure/Intervention specific? Specify | --- |
| Number of collaborating countries | 62 |
| List of collaborating countries | (Europe and outside of Europe) Algeria,Argentina,Australia,Austria,Bahrain,Bangladesh,Belgium,Bosnia and Herzegovina, Brazil, Bulgaria, Chile, China, Colombia, Costa Rica, Croatia, Cuba, Cyprus, Czech Republic, Denmark, Ecuador, Egypt, El Salvador, Estonia, Finland, France, Georgia, Germany, Greece, Hungary, India, Iran, Islamic Republic of, Israel, Italy, Japan, Jordan, Latvia, Libya, Lithuania, Mexico, Netherlands, New Zealand, Norway, Oman, Paraguay, Peru, Poland, Portugal, Romania, Russian Federation, Saudi Arabia, Serbia, Slovakia, Slovenia, South Africa, Spain, Sweden, Switzerland, Thailand, Tunisia, Turkey, Ukraine, United Kingdom |
| Number of collaborating centres | 680 |
| List of collaborating centres | see attachment |
| Type of activity/studies | |
| Clinical Studies | Yes |
| Experimental research | Yes |
| Other activity | Educational activity for foreign doctors attending our Unit for academic purposes |