D - Description
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | |
|---|---|
Name |
JSWG of PRES - Juvenile Scleroderma Working Group of the Pediatric Rheumatology European Society |
| Year of foundation | 2003 |
| Preterm and/or term newborn | No |
| Infants from 1 month to less than 24 months of age | Yes |
| Children from 2 years to less than 12 years of age | Yes |
| Adolescents from 12 years to less than 18 years | Yes |
| Paediatric age ranges of study participants covered by the network | 0-18 years |
| Multispeciality? Specify | no |
| Speciality/disease specific? Specify | pediatric rheumatology |
| Conditions covered? Specify | juvenile scleroderma- localised and systemic |
| Procedure/Intervention specific? Specify | observational studies |
| Number of collaborating countries | 0 |
| List of collaborating countries | all EU countries, and Russia, Brazil, Argentina and USA |
| Number of collaborating centres | 50 |
| List of collaborating centres | see attached list |
| Type of activity/studies | |
| Clinical Studies | Yes |
| Experimental research | No |
| Other activity | educational programms |