6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
STAND4Kids – Supporting Pediatrics Trials in Portugal |
|
| Involvement of patients, parents or their organisations in the protocol design | No | YPAG Lisboa started its activities in late 2021. Other PPI activities of STAND4Kids include connecting with patient/family groups and linking with EUPATI, as well as c4c and eYPAG related activities. We plan to expand this area of activity. |
| Involvement of patients, parents or their organisations in creating the protocol info package | No | YPAG Lisboa started its activities in late 2021. Other PPI activities of STAND4Kids include connecting with patient/family groups and linking with EUPATI, as well as c4c and eYPAG related activities. We plan to expand this area of activity. |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | YPAG Lisboa started its activities in late 2021. Other PPI activities of STAND4Kids include connecting with patient/family groups and linking with EUPATI, as well as c4c and eYPAG related activities. We plan to expand this area of activity. |