6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
IPCRN - Irish Paediatric Clinical Research Network; National Children's Research Centre (NCRC) |
|
| Involvement of patients, parents or their organisations in the protocol design | No | Not protocol design |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | Parent representatives may become involved in the design/review of age-appropriate patient infomation leaflets, informed consent forms, picture cards etc., via the Irish Platform for Patient's Organisations, Science and Industry (IPPOSI) |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | The National Children's Research Centre corresponds with the Irish Platform for Patient's Organisations, Science and Industry (IPPOSI). We are close to launching a paediatric clinical trials information campaign. |