6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
EUNETHYDIS - European Network for Hyperkinetic Disorders |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | Various National and International Parent and User Organizations have now been invite to comment on and contribute to protocol design |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | Several national parent ADHD organizations have been involved in developing patient information packages. |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | Parental organizations provided information in gaining national support for improved clinical services and lobbying for increased funding for both pharmacological and non-pharmacological clinical trials in ADHD. |