6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
c4c-S - conect4children Stichting |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | parent groups/patient groups/young people advisory groups are/have been involved in providing advice on study design, information sheets, informed consents, study material, standard of care via focus groups, 1:1 interviews and participation on advisory board meetings |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | parent groups/patient groups/young people advisory groups are/have been involved in providing advice on study design, information sheets, informed consents, study material, standard of care via focus groups, 1:1 interviews and participation on advisory board meetings |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | parent groups/patient groups/young people advisory groups are/have been involved in as being part of the MSM coordinating teams as well as MSM programme committees |