6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
ITCC - Innovative Therapies for Children and Adolescents with Cancer |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | ITCC has parent/patients' advocates represented in all our committees including the Executive Board, tumour-specific Committees, Sponsor Network Committee and Education & Training Committee who through this engagement have direct input in the association strategy and protocol design. The organisation also has the Advocate Committee who have developed an extended advocate network. |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | ITCC sponsors work directly with advocates for creating protocol information packages according to their own procedures. |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | Partnership with the Parents Association Imagine for Margo The International Confederation of Childhood Cancer Parents Organisations is a partner of ITCC. Parents are partners of the EU project that are submitted, when clinical research activity is part of the proposal |