6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
Pedmed-NL - Medicines for Children Research Network Netherlands |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | Patient/parent involvement (c4c), Cooperation with patient/parent associations in the Netherlands. VSOP is a partner of our network, in adddition we have access to other parent's patients organization upon request. As the national funding agency already requests to be involved in grant proposals, the culture is open to organize this in the Netherlands |
| Involvement of patients, parents or their organisations in creating the protocol info package | Yes | Patient/parent involvement (c4c), Cooperation with patient/parent associations in the Netherlands. VSOP is a partner of our network, in adddition we have access to other parent's patients organization upon request. As the national funding agency already requests to be involved in grant proposals, the culture is open to organize this in the Netherlands |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | Patient/parent involvement (c4c), Cooperation with patient/parent associations in the Netherlands. VSOP is a partner of our network, in adddition we have access to other parent's patients organization upon request. As the national funding agency already requests to be involved in grant proposals, the culture is open to organize this in the Netherlands |