6 -Public Involvement
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
STAND4Kids - Supporting Pediatrics Trials in Portugal |
|
| Involvement of patients, parents or their organisations in the protocol design | Yes | YPAG Lisboa began its regular activities in late 2021. In 2023, the group provided input on the design of its first rheumatology trial study (not publicly available). |
| Involvement of patients, parents or their organisations in creating the protocol info package | No | YPAG Lisboa began its regular activities in late 2021. In 2023, the group provided input on the design of its first rheumatology trial study (not publicly available)., including protocol and patient-relevant information documents. Contributions to other studies are ongoing. |
| Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | YPAG Lisboa began its regular activities in late 2021. This includes discussions around needs and priorities. Other PPI activities of STAND4Kids include connecting with selected patient/family groups (over 10 dedicated meetings held, contribution to meetings organised by selected patient organizations or national stakeholders) and linking with EUPATI. |