6 -Public Involvement
Quality
Management |
Training and
Education |
Public
Involvement |
Description | ||
---|---|---|
Name |
BPCRN - Belgian Pediatric Clinical Research Network |
|
Involvement of patients, parents or their organisations in the protocol design | Yes | Local patient engagement research project ongoing involving children, young people and parents in all stages of pediatric research. In addition, we have a liaison with multiple Belgian patient organisations, including those affected by rare diseases and collaborate with eYPAGnet. |
Involvement of patients, parents or their organisations in creating the protocol info package | Yes | see above |
Involvement of patients, parents or their organisations in prioritisation of needs for Clinical Trials | Yes | see above |