2 - Network organisation and process
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
Red SAMID - Spanish National Obstetric and Paediatric Research Network |
|
| Existence of an identified contact person for external enquiries | Yes | Máximo Vento Torresr, Project Leader and coordinator Aitor Teneria Yañez, Project manager |
| Existence of an internal steering committee | Yes | six key members 1.Maximo Vento 2.Oscar García 3.Fernando Cabañas |
| Existence of an external advisory steering committee directing the reporting party | Yes | |
| Existence of a website | Yes | www.redsamid.net |
| Existence of newsletter | Yes | www.redsamid.net |
| Existence of internal databases for disease, condition treatment and/or outcome | Yes | for VLBW infants: information on perinatal risk factors, neonatal interventions and short and long term outcomes |
| Provisions to ascertain data protection and data security | Yes | Data is submitted to the central office anonymously for patient and unit identities. Unique code and encrypted database are used. the database items, definitions and all protection and security precesses were possitibly evaluated by http://www.agpd.es/portalwebAGPD/index-ides-idphp.php Mirror Servers are used |
| Procedures to access the database by third parties | Yes | |
| Access to external databases/registries | No | |
| Standardised process to access an external database | No |