2 - Network organisation and process
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
PEDDCReN - Paediatric European Digestive Diseases Clinical Research Network |
|
| Existence of an identified contact person for external enquiries | Yes | Varsha Tailor, see first sheet |
| Existence of an internal steering committee | Yes | |
| Existence of an external advisory steering committee directing the reporting party | No | Not yet achieved, planned as a future task |
| Existence of a website | Yes | |
| Existence of newsletter | Yes | |
| Existence of internal databases for disease, condition treatment and/or outcome | Yes | Data has been collected for a range of conditions in this field |
| Provisions to ascertain data protection and data security | Yes | Yes, this has been provided by the university IT services and is secure enough for patient data |
| Procedures to access the database by third parties | Yes | By application to the project steering committee |
| Access to external databases/registries | No | |
| Standardised process to access an external database | No |