2 - Network organisation and process
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
NETSTAP e.V. - Network of National Paediatricians in Germany |
|
| Existence of an identified contact person for external enquiries | Yes | patients normaly do not contact our association but the members directly |
| Existence of an internal steering committee | Yes | internal steering committee meets abt. 10 times a year |
| Existence of an external advisory steering committee directing the reporting party | No | |
| Existence of a website | Yes | www.netstap.de |
| Existence of newsletter | Yes | at least twice a year by surface mail, regular information via intranet |
| Existence of internal databases for disease, condition treatment and/or outcome | Yes | disease registry for all NETSTAP members exists |
| Provisions to ascertain data protection and data security | Yes | is provided in each center independent of NETSTAP (requirement for membership) |
| Procedures to access the database by third parties | No | |
| Access to external databases/registries | No | |
| Standardised process to access an external database | No |