2 - Network organisation and process
|
Quality
Management |
Training and
Education |
Public
Involvement |
| Description | ||
|---|---|---|
Name |
EBMT PDWP - European Blood and Marrow Transplantation Paediatric Diseases Working Party |
|
| Existence of an identified contact person for external enquiries | Yes | |
| Existence of an internal steering committee | Yes | EBMT Paediatric Disease Working Party Board |
| Existence of an external advisory steering committee directing the reporting party | Yes | EBMT Board |
| Existence of a website | Yes | |
| Existence of newsletter | Yes | |
| Existence of internal databases for disease, condition treatment and/or outcome | Yes | |
| Provisions to ascertain data protection and data security | Yes | |
| Procedures to access the database by third parties | Yes | e.g. EuroCord or other study groups according to specific contracts and requests |
| Access to external databases/registries | Yes | Upon request to IBMTR e.g. |
| Standardised process to access an external database | No |